Novartis organizes a draw to offer the world's most expensive medicine to 100 condemned babies
The Swiss laboratory Novartis has announced that it will offer one hundred babies suffering from spinal muscular atrophy (SMA) and randomly choosing an injection of Zolgensma, considered to be the most expensive drug in the world (1.9 Million. A lottery system that indignant l 'public opinion.
Can the lives of children with spinal muscular atrophy (ADM) be played in the lottery?
This is the question posed by the recent announcement from the pharmaceutical laboratory Norvatis. The latter has indeed announced that he would offer Thursday to 2 hundred babies under two years of age a single dose of Zolgensma, the price of which was set last May at $ 2,125 million in the United States, or nearly 1,9, XNUMX million euros. Which makes it, to date, the most expensive drug in the world.
If the generosity of the Swiss laboratory is the subject of such controversy today, it is because the choice of children who will benefit from this innovative treatment will be made by a lottery system. According to Reuters, 50 children will first be drawn to receive the drug in February. The 50 remaining doses will be distributed during the year 2020. France is currently excluded from this draw because of its health system allowing the reimbursement of Zolgensma. At least seven children have also been treated with this medication.
https://www.pourquoidocteur.fr/Articles ... e-au-monde
You should know that this gene therapy comes from the Telethon and French public research, which adds to the tariff scandal.
So, "shocked" or "not shocked"?