The Novartis Big Pharma lottery !!!

[GuyGadebois]

Novartis organizes a draw to offer the world's most expensive medicine to 100 condemned babies

The Swiss laboratory Novartis has announced that it will offer one hundred babies suffering from spinal muscular atrophy (SMA) and randomly choosing an injection of Zolgensma, considered to be the most expensive drug in the world (1.9 Million. A lottery system that indignant l 'public opinion.

Can the lives of children with spinal muscular atrophy (ADM) be played in the lottery?

This is the question posed by the recent announcement from the pharmaceutical laboratory Norvatis. The latter has indeed announced that he would offer Thursday to 2 hundred babies under two years of age a single dose of Zolgensma, the price of which was set last May at $ 2,125 million in the United States, or nearly 1,9, XNUMX million euros. Which makes it, to date, the most expensive drug in the world.

If the generosity of the Swiss laboratory is the subject of such controversy today, it is because the choice of children who will benefit from this innovative treatment will be made by a lottery system. According to Reuters, 50 children will first be drawn to receive the drug in February. The 50 remaining doses will be distributed during the year 2020. France is currently excluded from this draw because of its health system allowing the reimbursement of Zolgensma. At least seven children have also been treated with this medication.

https://www.pourquoidocteur.fr/Articles ... e-au-monde

You should know that this gene therapy comes from the Telethon and French public research, which adds to the tariff scandal.
So, "shocked" or "not shocked"?

[Christophe]

What a band this crack! I do not believe it...

Does the Hippocratic Oath speak to them?

[GuyGadebois]

Finally Christophe, you have to live well!

[Christophe]

No in this case it is, must kill! (kill those who have not had a second chance in the Lottery ... since they have already had no luck in the Genetic Lottery ...)

As it is in the subject I post this one here:

87493390_10219703643159870_7824623002410024960_n.jpg (82.43 KB) Viewed times 4470

[Exnihiloest]

That children's lives depend on a lottery is horrible, but without a lottery all die even worse. And even if we put in place selection criteria, they will always be subject to caution, we will find arbitrariness, and we will have the same number of deaths as in the lottery. So the solution is "the state must pay for these treatments", private companies do not have to make up for its shortcomings or advertise with so-called humanitarian operations and in fact advertising.

Why is the price so high? It is a gene therapy today complex to develop, and nobody wants to work for nothing in the whole chain that leads to the product.
I would like to remind you of some obvious facts which are not obvious to everyone. Science and technology, whatever they are, progress in synergy. For example, advances in electronics, including in video game electronics, are contributing to the advancement of medical imaging. If you penalize the electronics industry, you will penalize medical research.
Without this synergy, we cannot move forward. Believe that one can target narrow areas of research under the pretext that they would be useful to humanity, while ignoring others because they would be trivial like video games or could be diverted to questionable ends like Monsanto's GMOs, is stupid.

I accuse the anti-GMOs of being responsible for a reduction in investments in the field of genetic manipulation by demonizing GMOs, of being consequently responsible for the current underdevelopment of techniques and materials of gene manipulation that l agronomy should have created and developed, and therefore ultimately be heavily responsible for a scientific and technological backwardness in the whole field, which the synergy of which I spoke could also have produced in the interest of the medical profession.
I accuse the anti-GMOs of having by their actions, penalized medical research, complicated the manufacture of gene therapy drugs and increased the cost compared to what it was possible to do without them. And I would bet that they are the same who will be indignant at the cost of gene therapies!

[GuyGadebois]

Magnificent response (but not surprisingly) which confirms and justifies the contempt, the cynicism of the labs (which in the process have swallowed up public Telethon money and confiscated the work of researchers paid by our taxes), allowing you in the process to spit on your usual scapegoats, all disguised as "Zola defending science". You are disgusting.

[Janic]

You should know that this gene therapy comes from the Telethon and French public research, which adds to the tariff scandal.
So, "shocked" or "not shocked"?

this is what is currently happening with the covid, research is done on public funds (our money) [*] and the labs manufacture and collect. (our money again!)
Just a clarification, this Medoc does not cost 2 million, it is the price fixed by the manufacturer to distribute a unique product (since under patent) and therefore this manufacturer sets this exorbitant price for, supposedly to amortize its investments. In fact it may only have cost a few euros to manufacture and this gesture of "generosity" is only advertising / marketing, to have guinea pigs. When it goes generic, in a few years, the real price will come to light and people will realize, once again, that they got fucked, financially.

[*] dixit the broadcast is in the air and therefore public health doctors and medical academies.

[GuyGadebois]

What a band this crack! I do not believe it...
Does the Hippocratic Oath speak to them?

It is the fault of these manure of eco-gauchos-bobos-anti GMO-anti Progress. You understand nothing my poor.

[Exnihiloest]

@janic

It is public research that will seek the private sector for manufacturing, it is not the private sector that begs for anything.

Why does the public not manufacture? The public has not developed the skills or the institutions for that, who is to blame? Private? !!! And the rare times that the public has done so, as in France INRA with its fields of GMO crops, anti-GMO activists have destroyed them.

Manufacturing is expensive. It is only the anti-GMO or anti-pharmaceutical industry beaufres who believe that it only takes a snap of your fingers to make a gene therapy at 1 €. What are they waiting for to do it themselves if it's so simple and so inexpensive?

[Exnihiloest]

You are disgusting.

Anti-GMOs and those who encourage them penalize gene technologies.
Anti-GMOs and those who encourage them will have their share of responsibility in the death of these children.
And these cowards not only deny their responsibilities but also spit on the industry which manufactures medicines for these children!
You are abject.